Just a Little Bit Further

Just a Little Bit Further

After submitting the first draft of my master's thesis a little more than a week ago, I received feedback from my advisor that was positive, but nonetheless indicated that I had some work to do. With a week to make the necessary revisions, I thought it would be no big deal.

But as last week wore on, it began to sink in just how much things had changed for me since I began my master's program in urban studies back in September of 2000. Gone was the strength and energy that had once allowed me to push everything else aside and complete my work, no matter how long it took to get things just right. Now, I have to be more vigilant about my health, which takes away from the time that I have to work. Even when I have the time, my energy often betrays me, thanks to my weak DMD heart and the medications I take to sustain it. And after getting shocked 18 times by my internal defibrillator on one very scary night in July, I had to make sure that I did not allow myself to get too stressed out! So I tried to work at a slower pace, taking frequent breaks. It was highly frustrating, but I knew that (like Red in the clip above from my all-time favorite movie, "The Shawshank Redemption") if I had come this far, I could come just a little bit further.

By yesterday, with a deadline looming and on the verge of exhaustion, nothing was going to stop me. And, if only for a moment, I was able recapture some of my old magic, pushing myself every time I wanted to take a break. Just after midnight, I submitted my paper. We'll see what happens, but it sure was nice to visit with my old self and to know he is still within me and I can channel him from time to time!

UPDATE: My advisor was impressed...my paper now goes to the rest of my thesis committee for review...

Mission Accomplished

Mission Accomplished

For those who have not heard, I finally finished writing my master's thesis in urban studies late last Friday night. While it is only a first draft and must go through several approvals until it is officially accepted by the university, I consider this to be a pretty momentous occasion, in light of the fact that six years ago, I had abandoned all hopes of earning my master's degree and withdrew from school. At that time, I was adjusting to life with a tracheostomy and a ventilator, along with the nursing care that accompanied it. In addition, I had begun taking a bunch of cardiac medications, which made me feel exhausted and unmotivated. In fact, I was so resigned to the fact that I would never earn my master's degree in the field that I love, I referred to my autobiography as "the thesis I never wrote."

Today, I am taking even more medications and battling fatigue -- and anxiety (caused by my cardiac scare over the summer). However, after my autobiography was published last year and I was still alive and kicking, I had decided to revisit completing my degree. Thankfully, the Department of Geography and Urban Studies at Temple University welcomed me back with open arms and gave me the chance to do so. I also had many people motivating me, particularly my friends, Art and Emma, who each, in their own way, helped me to realize that finishing my degree would be a worthwhile endeavor.

In case you were wondering, my thesis is about housing accessibility for those with disabilities in Philadelphia. My research entailed interviewing several housing developers working in the city to find out their opinions on housing accessibility requirements under the law, as well as to learn about their attitudes toward and knowledge of people with disabilities. My hope is that by talking to these developers, advocates for those with disabilities will be better able to understand the development process and can bring about a better housing situation for people with disabilities in Philadelphia, more than a quarter of whom live in poverty and many of whom are aging.

I will post further news about my thesis as soon as I hear more about it, but I will most likely be graduating in January!

Catching Up

Catching Up

Back when I was a student at Temple University, I hired several student helpers to assist me on campus. Due varying class schedules (mine and theirs), most helped me for only a semester or two and then pretty much disappeared from my life.

So you can imagine my surprise when, a few months after writing a guest column for Temple's alumni magazine, I received an e-mail from Nicole (in the picture above). I instantly recalled how she had been one of my favorite helpers. We had lost touch shortly before graduation.

After e-mailing back and forth a few times over the past year, Nicole, who hails from New York, stopped by today to see me and to catch up on old times. Though we graduated college nearly 10 years ago, Nicole hasn't aged one bit and has the same engaging personality that made look forward to seeing her every day. We talked and talked and talked some more today (certainly no stretch for me). We took some photos and then I presented her with the very last first-edition copy of my book. Hopefully, that made her trip Worth the Ride . My only regret is that Nicole doesn't live near Philadelphia.

Have a safe trip home, Nicole. Come back to visit soon!

Thanks for the Memories

Thanks for the Memories

It's awfully hard to believe that I graduated from Temple University nearly 8 years ago! But even though my undergraduate days have been over for so long, I remember them like they were just yesterday. I remember how hard I worked, how much fun I had, and how independent I was. It was, without a doubt, the greatest time in my life.

So it's always nice to return to the scene of the crime, so to speak. Today I attended an alumni brunch at Temple's School Communications and Theater, where I majored in journalism. It was an opportunity to catch up with a few familiar faces and meet some new ones, as well as to stuff my face with some good food. I did manage to stop eating long enough to pose for the camera with Hooter, the Temple Owls mascot.

As I write this entry, I'm chuckling at the memory of attending a basketball game in which Hooter was issued a technical foul for mistakenly entering the court because he/her/it thought that there was a timeout on the floor. Former head coach John Chaney was furious at the call and he ended up with a technical foul as well. Then the team lost the game, which made me livid!

While I can never re-create that time in my life, it sure does feel good to once again be a student at Temple, where I hope to complete my master's degree in urban studies by the end of the year, even though I don't physically spend much time on campus.

It's just too bad that the basketball team is not nearly as great as it once was. But maybe things will start to turn around because I'm back! GO OWLS!!!

I'm Back!!!

I'm Back!!!

When I had my tracheotomy in 2002, I had every intention of completing my studies at Temple University, where I had been pursuing a master's degree in urban studies. However, I found it difficult both physically and emotionally and eventually left school the following year. I never thought I'd return because, quite honestly, I wasn't sure I'd even be around.

Four years later, I'm still here so I've decided to give it another shot. Had I not left in the first place, I likely never would have written my book or launched this blog. But I've always finished what I started, so it didn't sit well with me to leave school. Plus, my interest in cities and the field of urban studies has never died.

So today, with frigid weather conditions outside (see me above all bundled up), I headed to campus to meet with some of the professors in the department to explain why I had left so abruptly in 2003 and to talk a bit about the nature of my disability, something I had rarely discussed with them before, out of concern that it would change the way people saw me. We also discussed possible thesis topics.

I'm hoping to finish my degree by the end of the year. It's not going to be easy, as my energy is limited, but I figure that if I can write a book, I can write a thesis. Even if I do, though, it can't be the end. It has to lead to something. Maybe I won't have a long career but I'm doing this so I can work in the field I love.

Wish me luck. I'll be sure to keep you updated on my progress.